Wednesday, June 25, 2008

Support groups for peeps with herpes

A.k.a. "Herpeeps!" Thanks, Rajah. ;)

I never thought I would be the kind of person who needed a support group. But I am so over giving a crap about what kind of person I thought I'd be, or have turned out to be, or am. Blah blah blah. Who cares.

Despite the minimal effect having type 1 will most likely have on me, I went to a herpes support group on Tuesday night, to hear people's stories and to tell my own.

And it was a lot of fun, and most importantly, there were those cute little rolled up sandwiches, fresh fruit salad, and great brownies. Yum.

It's great to be around other people who have GHSV and to be able to talk about it out in the open. There were literally all ages and types in attendance, further emphasizing the fact that normal people of all walks of life get this virus. There was an adorable college aged couple, professionals who had come straight from work, a few retirees, and even a cute boy wearing Chucks who must have gotten spooked and took off after the first part of the meeting. (damn!)

Was the meeting run perfectly? No. There is, as with most things, room for improvement. But these people are volunteers, and bless their hearts for doing it at all. I'm just grateful that they are doing it, and grateful that the meetings are there for those who want to take advantage of them.

It's freeing to be talking about it with others who can relate. It was mostly GHSV2 but there were a few other GHSV1 as well. (The only person who has had a type 1 recurrence had one 5 years after her primary, and it's been 5 years since that one! yipeee!) We shared stories, laughed, cried (someone in the other group circle did, anyway), answered questions for one another... they pretty much had to drag us out of there at 10 o'clock.

I bought a book about GHSV, took a brownie for the road, and chatted with a new friend for a while outside before leaving. Good times at herpes meetings, I'm tellin' ya.

For info on your local chapter, call the national herpes hotline at 919-361-8488.

A final thought - If all of the people in LA who have genital herpes were at the meeting, there would have literally been millions of people there, right? With the right PR, this could be the hottest meat market in the city.

Just sayin.'

13 comments:

Anonymous said...

Hello SilverLining, I just discovered your blog today, and I am so grateful that you decided to start this blog. My story mirrors yours (sort of), I was diagnosed with genital herpes 6 years ago, it was quite a emotional trauma (same as you described it, my life as I knew it was over). Back then the doctor told me it was just herpes, and that it didn't matter which type I had when I asked about it (this was in 2003 at a sexual health clinic in a big metropolitan city!). A month ago (in 2009!), after insisting on having the blood test type (which was starting to be more readily available in labs here), I tested neg for type 2, positive for type 1. I think I was more puzzled than glad when I received the news, as for the last 6 years I had lived thinking I had type 2 (as you said it, most people (including doctors) associate GH with type 2). I was also quite mad about this. 6 years of my life, where celibacy was a big part of it (I had only one long term relationship, where the guy was really understanding), but besides this guy, I refused to date, preferred not to get hurt by being rejected). I am in my mid-thirties, beautiful, with a master degree and a wonderful job, nobody understood why I was single. After my long term relationship ended last year, after 6 months or so, I discovered dating websites for people who had GH (back in 2003, I only looked at one site, but there wasn't that much people on it, and it meant I might have to move to Alaska to be with the guy...), anyway, I corresponded with a few guys, even met one (but the attraction wasn't there for me), then it dawned on me that I didn't exactly know which type I have. Hence me insisting on the blood test.

In six years, I had only experienced one outbreak (and that was after 5 years with it), and strangely enough it was brought on by the conversation I had with a guy (not even a friend and I was not involved with him, and not giving him the "talk"), he was telling the story of his friend who had been told by his ex. that she had herpes, and he was completely panicked, and this guy was complaining about this girl, and then when I told him that herpes 1 out of 4 has it, and even more 60% have type 1, and he might just probably have it, he acted in complete denial (that no of course he doesn't have it, not even cold sores, which might be the case, he could be part of the lucky few). But his childish reaction triggered such a negative emotion on my part (I couldn't believe how some people are so uneducated about this) that the next morning, I had my first recurrence ever. Almost like it was psychosomatic.

Overall, after much soul-searching and info searching, I know that having type 1 or type 2 is not not the end of the world. I would gladly date someone with type 2, who is open about it (honesty is just so attractive!), and if he is the real deal, then why not, love is hard enough to find with or without this.

Even if I am going through some anger regarding the fact that all the people with cold sores (or type 1 with no apparent cold sores) don't have to tell their partners up front, while people with GH type 1 are morally obliged to tell. I do intend to tell, as I value integrity and honesty, but I still think it is unfair. Half of my friends have cold sores, and it's not even an issue in dating. Finally, I am curious to know success stories of telling when you have GH type 1. Thank you again for your blog!
Clara

Anonymous said...

Thanks so much for this website!

I have a question. I have herpes 1 and it appears on my panty line.

What are the odds that I transmit the virus, if we use a condom and I do not have any symptoms.

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Most of the people need support groups because we want to share our problem with people that they have the same problem or they are in a similar situation.

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Ethics is a course that I take that I don't use most of the time and I bet that it is the same for a lot of people.

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Mr Peter said...

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Rachel Ama said...

I'm Rachel and I own a herbal Therapy Center. What I am about to share with you is based on actual fact and I am not a socially irresponsible person. I am a woman of character and I believed that we have only one purpose for existing and that is to help our fellow humans. And everyday millions of other people are joining me and waking up to the understanding that love is the only thing that matters in this life.

For the past 10+ years I have dealt with a lot of people who have come to me asking if herbal remedies will get rid of herpes, usually genital. I always tell people from what I have observed and heard about NATURAL REMEDY and I suggest that they try it for themselves. I have never told anyone that herbal remedy would cure their herpes.

I have never told anyone this because I have never had any physical proof to back that up... until this day.

I have always told anyone who would listen the mystical work herbal remedy do for me when ever I'm in depression, I could say that because if it did that for me, it would do the same for anyone else.

I have also always told people how herbal remedies got my doctor to successfully cured DIABETES, INFERTILITY, CANCERS, PARALYSIS, STDS & INFECTIONS.

And I tell anyone about how herbal remedy got me off the Lysinopril I was taking for my high blood pressure That also normalized within 2months. And I am thankful it did because Lysinopril has since been recalled for turning the livers of hundreds of thousands of people into mush!

And with all the good things herbal remedy has done for my body, I still resisted the urge to tell anyone suffering with herpes that herbal remedy would cure them... but now I am here to tell you differently because I finally came in contact with Dr Utu an African Traditional Herbal Practitioner.

Few days ago I received an email from a young lady and she told me that her doctor has told her that her body is 100% free of any HSV virus. That her herpes has been cured! I could feel her bouncing off the walls through her email... and my heart was just as happy for her.

I have asked her to please post a comment on my YouTube Channel.

I don't know how long she had been infected before she purchased Dr Utu African Traditional Herbal Cure and I do not know anything about the severity of her outbreaks. All I know was that she promised me that she was following the guidelines that Dr Utu gave her to the letter.

I know there are a lot of people who will think this is too good to be true... but I have always believed that herbal remedy was a viable cure for herpes - but without any proof I felt it would be seriously irresponsible to tell anyone that it would.

Please feel free to leave a comment to me but please no negative ones. My company is my life and I have spent over 10 years nurturing a good reputation for myself and my business. I am putting everything on the line here, so please bear with me until we know more.

Why am I risking so much? Why don't I just wait for her? - Are you serious? This is the BIGGEST health breakthrough in my entire lifetime! I'm over 60 and there have been NO CURES for anything since the day I was born! The big pharmaceutical companies all know there is no money in a cure. The money is in teaching you and me to 'live with' and 'manage' deadly, body-wasting and disgusting diseases for our entire lives.

Imagine the joy all over the world when her story breaks! I invite you all to share in that joy with her and with me.

You can also contact Dr Utu for yourself via e-mail; (d r u t u h e r b a l c u r e @ g m a i l . c o m)

Ethan Oliver said...

I am deeply concerned about the still increase in population of people living with HSV, HIV, CANCERS, HEPATITIS, STROKES in our society today because of ignorance, to be Frank all this big names are grammars. I saw comments of people DR UTU helped get rid of their diseases, with the increase in population of people living with various diseases and myself as a beneficiary to DR UTU traditional cure I thought I too should reach the world via comment. Many People believed traditional herbs are so primitive and some are even shy to purchase it in public. Some went as far as trashing the legendary name of herbal medicine hiding its numerous advantages and let publicly it disadvantage and yet makes it look big, all this are just for pharmaceutical gain. All pharmaceutical cure are derived from existing traditional herbal cure from ages.
Yes! I'm here to tell the world the actual FACT! which is; there is herbal cure for herpes, Ebola, HIV, cancers, hepatitis, ulcers, asthma, pile, diabetes and many big names of diseases. all my career I've lived my life believing and making research on this, till I confirmed it four years ago. Since four years ago and till today I still say yes! That among many real traditional herbalist Dr Nze Utu Njoku @ (drutuherbalcure) cures this diseases using African traditional herbs. After he cured me four years ago of genital herpes, ever since then I worked with him distance never a barrier, I'm a living witness to this. And I have directed both genital and oral herpes patients to him and they are permanently cured. I'm Ethan Oliver from Australia and also a herbal dealer and lover. I'm also a researcher on herbs for good health. Which also include Africa traditional herbal treatment, I support Herbal treatment, cure and vaccines. My view is based on my extensive research over a very long period of time, and my conclusion is, there is cure to all natural diseases including HSV, HIV, CANCERS, DIABETES, using the right medications with the right herbalist. Are you herpes positive and permanently want get rid of this disease or any of this big name diseases don't be scared to save yourself, contact Dr Utu for permanent herbal cure. Be bold and smart Don't be fooled by selfish people who say, cure is impossible.
Dr UTU e-mail , 'drutuherbalcure@gmail.com'

Ethan Oliver said...

I am deeply concerned about the still increase in population of people living with HSV, HIV, CANCERS, HEPATITIS, STROKES in our society today because of ignorance, to be Frank all this big names are grammars. I saw comments of people DR UTU helped get rid of their diseases, with the increase in population of people living with various diseases and myself as a beneficiary to DR UTU traditional cure I thought I too should reach the world via comment. Many People believed traditional herbs are so primitive and some are even shy to purchase it in public. Some went as far as trashing the legendary name of herbal medicine hiding its numerous advantages and let publicly it disadvantage and yet makes it look big, all this are just for pharmaceutical gain. All pharmaceutical cure are derived from existing traditional herbal cure from ages.
Yes! I'm here to tell the world the actual FACT! which is; there is herbal cure for herpes, Ebola, HIV, cancers, hepatitis, ulcers, asthma, pile, diabetes and many big names of diseases. all my career I've lived my life believing and making research on this, till I confirmed it four years ago. Since four years ago and till today I still say yes! That among many real traditional herbalist Dr Nze Utu Njoku @ (drutuherbalcure) cures this diseases using African traditional herbs. After he cured me four years ago of genital herpes, ever since then I worked with him distance never a barrier, I'm a living witness to this. And I have directed both genital and oral herpes patients to him and they are permanently cured. I'm Ethan Oliver from Australia and also a herbal dealer and lover. I'm also a researcher on herbs for good health. Which also include Africa traditional herbal treatment, I support Herbal treatment, cure and vaccines. My view is based on my extensive research over a very long period of time, and my conclusion is, there is cure to all natural diseases including HSV, HIV, CANCERS, DIABETES, using the right medications with the right herbalist. Are you herpes positive and permanently want get rid of this disease or any of this big name diseases don't be scared to save yourself, contact Dr Utu for permanent herbal cure. Be bold and smart Don't be fooled by selfish people who say, cure is impossible.
Dr UTU e-mail , 'drutuherbalcure@gmail.com'

Lizah Purity said...

I want to share my testimony on how i get cure of my HERPES GENITAL with the help of Doctor idahosa, i have being suffering for this disease for a very long time now.i have try several means to get rid of of the (HERPES) disease for the last five years and had constant pain, especially in my knees. During the first year,I had faith in God that i would be healed someday.This disease started circulate all over my body and i have been taking treatment from my doctor, few weeks ago i came on search on the internet if i could get any information concerning the prevention of this disease, on my search i saw a testimony of someone who has been healed from (Hepatitis B and Cancer) by this Man Dr idahosa and she also gave the email address of this man and advise we should contact him for any sickness that he would be of help, so i wrote to Dr idahosa telling him about my (HERPES Virus) he told me not to worry that i was going to be cured!! hmm i never believed it,, well after all the procedures and remedy given to me by this man few weeks later i started experiencing changes all over me as the Doctor assured me that i am cured,after some time i went to my doctor to confirmed if i have be finally healed behold it was TRUE, So friends my advise is if you have such sickness or any other at all you can email Dr idahosa on dridahosasolutioncenter@gmail.com sir i am indeed grateful for the help i will forever recommend you to my friends and to share this to every one that have any of this sickness you can call him on via +2348134261542